Huntington's Disease Association

Registered charity 296453 · since 1987hda.org.uk·England, Wales·Updated 30 October 2026

At a glance

95.6%

Of applications succeed

Key takeaways

If your work helps people affected by Huntington's disease, the charity runs two routes: welfare grants for essential household goods and specialist equipment, and research grants for work that directly improves the lives of people affected and their families.
Its welfare grants reported 68 applications, 65 grants and a total of £24,483, but the annual giving figure and grant range are not stated, so base your request on the specific item or need rather than an assumed amount.
The charity says it funded 95.6% of requests (65 of 68), which is a share of welfare requests rather than of grant money, and no publicly published application process is given, so ask the charity how to apply before you write.
Research applications are reviewed once a year by the Medical Advisory Board before the Executive Council decides, so allow for that timetable.
No exclusions are stated, but a research proposal that is not of direct significance to people affected by Huntington's disease and their families falls outside what the charity says it funds.

Overview

Huntington's Disease Association is a charity registered with the Charity Commission for England and Wales (charity number 296453).

The Huntington's Disease Association is a charity whose purpose is the relief and treatment of people suffering from, or believed to be suffering from, Huntington's disease, along with financial support for such people and their families in need, and research for the cause and possible cures or prevention of the disease. It describes itself as a support charity, with raised funds supporting specialist advisory, youth engagement and helpline services, and training for professionals and care homes. Its two grant programmes are welfare grants, which help people buy essential household goods and specialist equipment, and research grants, which are made each year after approval and recommendation by the Medical Advisory Panel. Its welfare grants programme received 68 applications, made 65 grants and paid a total of £24,483.

What they fund

Priority Areas

The Huntington's Disease Association is a support charity whose raised funds support specialist advisory, youth engagement and helpline services, and training for professionals and care homes. Its welfare grants help people affected by Huntington's disease to buy essential household goods and specialist equipment. It also raises funds for medical and social or therapeutic research of direct significance to people with Huntington's disease and their families. The Association says its research funding is directed towards work that directly improves the lives of people affected, with a focus on practical support in the present. Research applications are reviewed by its Medical Advisory Board, with decisions made by the Executive Council.

Themes

Huntington's disease research
Welfare support

How to apply

Research applications are reviewed annually by the Medical Advisory Board before the Executive Council makes a decision; research grants are made following approval and recommendation by the Medical Advisory Panel.

Application success factors

What the charity says:

Research funding is directed towards work that directly improves the lives of people affected by Huntington's disease.
Research should be of direct significance to people affected by Huntington's disease and their families.

Where they fund

Registered area of operation (Charity Commission)

Similar funders

Funders supporting work similar to Huntington's Disease Association.

The Helen Straker CharityNo public processGave £180k The Hobson CharityRollingGave £654k Get A-HeadFixed deadlines MND AssociationFixed deadlinesGave £10.4M Alan Davidson FoundationNo public processGave £2.3M Sarah's TrustInvitation onlyGave £81,400 Histiocytosis UKRolling Masonic Samaritan FundNo public processGave £31,000 The Albert Hunt TrustFixed deadlinesGave £10.6M Herefordshire Community FoundationRollingGave £604k

Five years of accounts

Financial year	Income	Expenditure	Grants paid	Accounts document
year to 31 March 2022	£2,166,325	£1,419,521	—	Accounts for year to 31 March 2022
year to 31 March 2023	£2,003,578	£2,034,566	—	Accounts for year to 31 March 2023
year to 31 March 2024	£2,266,817	£2,372,725	—	Accounts for year to 31 March 2024
year to 31 March 2025	£2,531,843	£2,716,817	—	Accounts for year to 31 March 2025
year to 31 March 2026	£3,171,364	£2,779,017	—	Accounts for year to 31 March 2026

— No grants figure for those years.

Figures from the charity’s filed accounts and its register entry. The document icon links to the charity’s entry on the Charity Commission register, where its filed accounts can be found.