Lipedema Foundation

• Lipedema Foundation's stated programme is collaborative research into the basic biology, genetics, epidemiology, diagnosis and treatment of Lipedema, so work outside that field is unlikely to fit, and research that builds and leverages a patient-researcher community is one it says it favours.
• Across its filings, about 8 in 10 of its 39 grants to organisations fall between $21,000 and $600,000 and half are $125,000 or less, so a request near that median is a realistic starting point, though its largest grant was about $835,000.
• Applications are accepted on a rolling basis, and its website points researchers to its grant programme and letter of intent submission information without setting out further steps, so a grant writer should start there and follow it closely.
• In its most recent filing, 63% of grant dollars to organisations went to groups it had also funded in its earlier filings, so relationships with existing grantees appear to count for a lot.
• Its geographic focus is not stated, and its grants have mainly gone to Connecticut, Massachusetts, California, Texas, Tennessee, Germany and Europe, but that describes where its grants have gone, not who may apply.

The largest grants to organisations in the foundation’s latest filing:

• President And Fellows Of Harvard College · Embedded ethics fund and quantum initiative fund
  $833,3332024 tax year
• Greenwich Academy · Center for math excellence as part of lead the way campaign
  $600,0002024 tax year
• Mayo Clinic · Support transplant center, cancer center, science of ai and alix school
  $250,0002024 tax year
• Palo Alto Veterans Institute for Research · Research proposal: extracellular matrix remodeling in lipdema
  $125,0002024 tax year
• Louisiana State University · Research proposal - "a novel approach to examine the adipose cellular kinetics of lipedema"
  $125,0002024 tax year
• Washington University · Research proposal - "adipose tissue biology and effect of weight loss in women with lipedema"
  $125,0002024 tax year
• Expii · Support live math scholarship program which finds high-motivation-low-access middle schoolers from underprivileged areas and gives them extraordinary math coaching
  $100,0002024 tax year
• University Of Charite Berlin · Research proposal: 3d-histopathology of lipedema
  $96,5802024 tax year

Grants to organisations listed in the foundation’s Form 990-PF filings. Grants to individuals are not shown.

Figures from the foundation’s IRS Form 990-PF filings. Assets are at fair market value at year end. The document icon links to each year’s filing on ProPublica Nonprofit Explorer.