Quick Summary
Name: Rett Syndrome Research Trust Inc (RSRT) Status: Active Grant Maker
Key Facts
| Metric | Value |
|---|---|
| Annual Giving | $6.4 million (2025) - $10.3 million (2023) |
| Grant Range | $1 million - $8.1 million |
| Average Grant | ~$1-2 million |
| Application Method | Rolling / Invitation Only |
Contact Details
Website: https://reverserett.org/ Phone: (203) 445-0041 Email: monica@rsrt.org (Monica Coenraads, CEO/Executive Director) Address: 67 Under Cliff Road, Trumbull, CT 06611
Geographic Focus
Worldwide - RSRT describes itself as "the largest worldwide funder of Rett research" and funds research globally, including academic and pharmaceutical research in the United States, Europe, and other regions. No specific geographic restrictions.
Funding Priorities
- Genetic medicines targeting the root cause of Rett Syndrome and MECP2 disorders
- Gene therapy development and advancement to clinical trials
- RNA editing technologies (ADAR-mediated, base-editing, prime-editing)
- Gene editing with artificial intelligence applications
- Translational research moving therapies from laboratory to clinical trials
- Curative approaches rather than symptomatic treatments
- Academic and biopharma partnerships advancing therapeutic development
What They Don't Fund
RSRT does not fund:
- Research on symptomatic treatments (focus is on curative genetic approaches)
- Research unrelated to Rett Syndrome or MECP2 disorders
- General medical research outside their strategic priorities
- Non-research activities
Application Method
No traditional funding calls - RSRT operates strategically:
- Accepts unsolicited proposals at any time (rolling basis)
- Researchers submit a letter of intent to Monica Coenraads outlining project, timeline, and budget
- RSRT also actively recruits pioneering researchers when they identify discoveries applicable to Rett Syndrome
- Highly strategic, hands-on approach to funding
- Often initiates partnerships and collaborations rather than responding to open applications
References
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