Jain Foundation
At a glance
This funder mainly gives to individuals. Around 87% of its grant-making in tax years 2022–2024 went to individuals rather than organisations, so it may not be a good fit for organisational applicants.
Key takeaways
- Check first that the work bears on dysferlinopathy or CNNM2-associated disease, because the foundation funds only projects with that application and does not fund overhead to the research institution.
- Applications are rolling, and the foundation encourages a 1–2 page preproposal before a full proposal, so a short preproposal is a sensible first step at any time.
- Its latest filing reports that all of its grant dollars to organisations went to groups it had funded in earlier filings, so the process appears relationship-led and a close working link is worth building.
- The grant range is not stated, so ask the foundation about likely size before setting a figure, and expect the staff involvement it describes, including help refining proposals and quarterly progress updates.
- Organisations whose work does not apply to these diseases, or whose project would compete with others on the same topic, should not apply.
Overview
Jain Foundation is a US private foundation based in Seattle, WA.
What they fund
Profile derived from the foundation's IRS Form 990-PF filings (TY2024, TY2023, TY2022) and its website, with every statement checked against those sources. Sources read on 7 October 2026.
Priority Areas
The Jain Foundation funds focused research aimed at treatments or a cure for dysferlinopathy, with projects specific to dysferlin rather than broad areas of science. Researchers, organisations and companies inside and outside the United States can be funded. Work is directed towards practical barriers to therapy development, including understanding disease mechanisms, pre-clinical and clinical testing, diagnosis and patient registries. Funded projects range across genetics, protein structure, dysferlin’s cellular function and disease pathology, as well as preclinical investigation of prospective treatments, diagnostics and disease natural history. The Foundation also has a separate team dedicated to research and cures for disease associated with mutations in CNNM2. It takes an engaged approach: staff review proposals, monitor progress, provide expert guidance and research reagents, and encourage collaboration among researchers.
Themes
- Dysferlinopathy treatment
- CNNM2-associated disease
- Disease mechanisms
- Pre-clinical and clinical testing
- Patient diagnosis
- Patient registry
Geographic Focus
United States.
What They Don't Fund
- Overhead to the research institution
- Dysferlinopathy only: proposed projects that do not have application to these diseases; competing projects on the same topic
How to apply
Researchers are encouraged to submit a 1–2 page preproposal before submitting a full proposal.
Application success factors
- Repeat giving: In its TY2024 filing, 100% of its grant dollars to organisations went to organisations it had also funded in its TY2022 or TY2023 filing.
What the foundation says:
- Projects should have application to dysferlinopathy and address an area of need essential for therapy development.
- The Foundation works with researchers to refine proposals, including experimental design, collaborations and aims.
- The scientific advisory board reviews and approves all funded projects.
- The Foundation holds quarterly updates to track progress and identify issues it may help solve.
Where grants go
From grants to organisations in the foundation’s filings for tax years 2022–2024.
Grant dollars by state
- The largest single recipient received 98% of grant dollars to organisations.
- In tax year 2024, 100% of grant dollars went to organisations Jain Foundation had funded in earlier filings.
- No grants were paid directly to organisations outside the US.
- 100% of grant dollars went to intermediaries that regrant to other organisations.
Grants
The largest grants to organisations in the foundation’s latest filing:
- Project 8P Foundation · Scientific research grant$600,0002024 tax year
Grants to organisations listed in the foundation’s Form 990-PF filings. Grants to individuals are not shown.
Officers and directors
- Laura Rufibach — Co-President
- Doug Albrecht PhD — Co-President
- Ashkay Jain — CEO
- Indrima Jain — Director
- Ajit Jain — Director
From the latest Form 990-PF filing
3 years of tax filings
| Year | Total expenses | Grants paid | Assets | Filing document |
|---|---|---|---|---|
| 2022 tax year | $4,168,261 | $2,637,625 | $49,780,022 | Filing for 2022 tax year |
| 2023 tax year | $5,211,841 | $3,324,301 | $79,116,385 | Filing for 2023 tax year |
| 2024 tax year | $5,388,833 | $3,436,865 | $93,069,116 | Filing for 2024 tax year |
Figures from the foundation’s IRS Form 990-PF filings. Assets are at fair market value at year end. The document icon links to each year’s filing on ProPublica Nonprofit Explorer.
Sources
Registers and filings
Other sources
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At a glance
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Applying to Jain Foundation?
Hinchilla drafts your answers around this funder's priorities, using your organisation's own documents.
No credit card required