The International Alliance of ALS / MND Associations

Registered charity 1079504 · since 2000als-mnd.org·International·Updated 30 October 2026

At a glance

Open to applications

Fixed application deadlines · unsolicited applications welcome

Key takeaways

The Alliance's work fits best where a project builds early-stage ALS/MND research infrastructure and readiness, such as registries, biobanking preparation, data collection pathways, genetic and epidemiological studies, clinical trial readiness or locally relevant pilot work, and it asks for collaboration that strengthens leadership and benefit within an eligible country.
The most it names is up to $50,000 per selected project, and it says a focused proposal with a clear purpose, realistic plan and measurable outcome may be appropriate without requesting the maximum, so a modest, well-scoped request is a sensible approach.
Applications open on June 21 and close on September 1, so plan your proposal around that window and read the programme materials on eligibility, funding and application requirements before writing.
Do not apply with a project focused only on FTD, which the SEED Grant Program puts outside its scope.
Its annual giving and typical grant size are not stated, so treat the $50,000 figure as an upper limit, not a norm.

Overview

The International Alliance of ALS / MND Associations is a charity registered with the Charity Commission for England and Wales (charity number 1079504).

The International Alliance of ALS/MND Associations was founded in November to provide an international community for ALS/MND associations from around the world. It is a global network of ALS/MND associations informed by PALS/CALS, which builds capability for its members and connects to external stakeholders. Its SEED Grant Program provides early-stage funding to strengthen ALS/MND research infrastructure and readiness in eligible countries, with up to US$50,000 available per selected project. SEED is the only programme named in the information available, so it is the Alliance's main funding route as far as that information shows.

What they fund

Priority Areas

The Alliance funds early-stage projects that strengthen ALS/MND research infrastructure and readiness in eligible countries. It supports local leaders, institutions and networks to build foundations for future ALS/MND research, collaboration and larger-scale funding. SEED backs practical steps that create, connect or strengthen people, systems, partnerships, data pathways and infrastructure. Projects can address registries, biobanking preparation, data collection pathways, genetic and epidemiological studies, clinical-trial readiness and locally relevant pilot work. The programme is open to researchers, clinicians, academic institutions, hospitals and clinics, research networks, multi-site collaborations and regional partnerships. Collaborations with high-income countries are eligible when they strengthen research readiness, leadership, ownership and benefit within an eligible country.

Themes

ALS/MND research infrastructure
ALS/MND registries
Biobanking preparation
Data collection pathways
Genetic and epidemiological studies
Clinical trial readiness
Locally relevant pilot work

Geographic Focus

Worldwide.

What they don't fund

SEED Grant Program only: Projects focused only on FTD are outside the scope of the program

How to apply

For SEED, applicants should consult the programme materials for details on eligibility, funding and application requirements.

Deadlines: SEED application rounds have a published application deadline.

Application windows:

SEED Grant Program: Applications open on June 21 and close on September 1.

Application success factors

What the charity says:

Applications are assessed for significance and impact, rationale and design, team capability, feasibility, capacity-building value, and fit with the programme’s purpose.
Reviewers consider the local starting point, the need being addressed and whether the work can make measurable progress towards ALS/MND research readiness.
A focused proposal with a clear purpose, realistic plan and measurable outcome may be appropriate without requesting the maximum amount.

Where they fund

Where it says it funds

International

Similar funders

Funders supporting work similar to The International Alliance of ALS / MND Associations.

Meningitis Research FoundationFixed deadlines Tres Cantos Open Lab FoundationRollingGave £1.3M Bukhman FoundationNo public processGave £1.3M Race Against DementiaRollingGave £1.9M MS International FederationInvitation onlyGave £175k The British Society of GastroenterologyInvitation onlyGave £8,556 AMMF – The Cholangiocarcinoma CharityFixed deadlinesGave £90,771 Alzheimer’s Research UKFixed deadlinesGave £28.6M Action for A-TFixed deadlinesGave £116k Society for the Study of Inborn Errors of Metabolism (SSIEM)Fixed deadlinesGave £45,800

Five years of accounts

Financial year	Income	Expenditure	Grants paid	Accounts document
year to 30 June 2021	£164,202	£228,139	—	Accounts for year to 30 June 2021
year to 30 June 2022	£374,814	£345,565	—	Accounts for year to 30 June 2022
year to 30 June 2023	£633,871	£585,958	—	Accounts for year to 30 June 2023
year to 30 June 2024	£595,025	£693,541	—	Accounts for year to 30 June 2024
year to 30 June 2025	£699,821	£737,463	—	Accounts for year to 30 June 2025

— No grants figure for those years.

Figures from the charity’s filed accounts and its register entry. The document icon links to the charity’s entry on the Charity Commission register, where its filed accounts can be found.