Dystonia UK

Registered charity 1062595 · since 1997dystonia.org.uk·England, Northern Ireland, Scotland, Wales·Updated 29 October 2026

Key takeaways

Dystonia UK directs most of its giving to direct support for people with dystonia, including information, local support networks and community initiatives, and it also campaigns on diagnosis, treatment access and mental health, so your request fits best if your work serves that community.
Its research funding is seed funding for promising projects, often with researchers, other charities or industry, and it depends on restricted donations or grants being available, so do not count on it.
The annual report gives no usable grants figure and no grant range, so ask the charity what size of request it considers before you set one, and do not assume it is competitive or relationship-led.
No application process is published, so the contact shown for getting in touch is the starting point.
A project with no link to dystonia is unlikely to match the stated aims.

Overview

Dystonia UK is a charity registered with the Charity Commission for England and Wales (charity number 1062595).

Dystonia UK is a charity registered with the Charity Commission for England and Wales, first established as The Dystonia Society by a small group of people living with dystonia. It exists to give hope and support to everyone living with dystonia and to create UK and worldwide awareness. Most of its funding goes to direct support for the community, and it funds research when restricted donations or grants allow.

What they fund

Priority Areas

Dystonia UK directs most of its funding to direct support for the dystonia community, including trusted information resources, stronger local support networks and community initiatives that help people feel informed, connected and understood. It also campaigns to improve diagnosis pathways, access to treatment and mental health support. When restricted donations or grants allow, it funds research into the causes, treatments and management of dystonia. Its research funding aims to stimulate progress through seed funding for promising projects, often in partnership with researchers, other charities or industry, generating early evidence and laying foundations for future breakthroughs. Its wider purpose is to give hope and support to everyone living with dystonia and raise awareness.

Themes

Dystonia causes
Dystonia treatments
Dystonia management

How to apply

No application process is published in the charity's annual report, its register entry or its website. The contact shown is for getting in touch.

Application success factors

What the charity says:

It aims to seed-fund promising research projects, often in partnership with researchers, other charities or industry.

Where they fund

Registered area of operation (Charity Commission)

Similar funders

Funders supporting work similar to Dystonia UK.

Scleroderma and Raynaud's UKFixed deadlinesGave £159k Diabetes Care Trust (ABCD)No public process David Solomons Charitable TrustRollingGave £122k Lupus UKFixed deadlinesGave £99,682 MND AssociationFixed deadlinesGave £10.4M James Tudor FoundationFixed deadlinesGave £1.4M General and Education Trust (GET)Fixed deadlinesGave £47,897 G S Plaut Charitable Trust LimitedInvitation onlyGave £79,209 Thrombosis UKFixed deadlines The Dorus TrustInvitation onlyGave £78,435

Five years of accounts

Financial year	Income	Expenditure	Grants paid	Accounts document
year to 31 March 2021	£421,975	£310,100	—	Accounts for year to 31 March 2021
year to 31 March 2022	£293,052	£262,278	—	Accounts for year to 31 March 2022
year to 31 March 2023	£277,412	£285,775	—	Accounts for year to 31 March 2023
year to 31 March 2024	£692,353	£321,276	—	Accounts for year to 31 March 2024
year to 31 March 2025	£422,337	£402,567	—	Accounts for year to 31 March 2025

— No grants figure for that year.

Figures from the charity’s filed accounts and its register entry. The document icon links to the charity’s entry on the Charity Commission register, where its filed accounts can be found.