myaware

Registered charity 1046443 · since 1995myaware.org·Ireland, United Kingdom·Updated 30 October 2026

At a glance

£226k
Annual giving, year to 31 March 2025
From filed accounts
Open to applications
Rolling, no deadlines · unsolicited applications welcome

Key takeaways

  • If your work is on myasthenia or a related condition, myaware's stated purpose fits closely, and projects outside that area do not match what it says it funds.
  • The annual report shows £225,501 paid out, and its stated geographic focus is the United Kingdom and the Republic of Ireland.
  • Applications are accepted on a rolling basis, but the grant range is not stated, so ask the charity what size suits a project before you set a budget.
  • Start with a short initial research proposal to the Research and Partnerships Officer; if the medical committee approves it, you receive the full-proposal form, and the trustees award funding when funds are available and reserves permit multi-year commitments.
  • Expect rigorous peer review, and prepare a lay summary of about 500 words, a technical summary of about 800 words, a budget, a milestone timeline and a plan for annual progress reports.

Overview

myaware is a charity registered with the Charity Commission for England and Wales (charity number 1046443).

Myaware exists to support people affected by myasthenia and related conditions, to raise awareness, and to fund research aimed at reducing their impact and ultimately finding a cure. It describes itself as the only charity in the UK solely dedicated to the support, care and advocacy of people affected by the myasthenias since its founding, although its official charity status was registered later. Its programmes include scientific research, specialist myasthenia nurses and training fellowships, and it has spent £1,182,982 on research into the myasthenias over the last five years.

What they fund

Priority Areas

Myaware makes grants for research into myasthenia and related conditions, including projects focused on their causes, cure, prevention, treatment and the quality of life of people living with them. It also supports clinician training, training fellowships and specialist myasthenia nurses. Its research aims to improve knowledge and understanding, identify best practice, explore treatment targets and predictive tests, and benefit people affected by myasthenia. Research proposals undergo rigorous peer review overseen by the myaware Medical Committee; funding is awarded by the Board of Trustees when funds are available and its reserves permit multi-year commitments.

Themes

  • Myasthenia research
  • Clinician training
  • Specialist myasthenia nurses

Geographic Focus

United Kingdom; Republic of Ireland.

How to apply

Applicants submit an initial research proposal to the Research and Partnerships Officer. The myaware medical committee assesses proposals and approves progression to a full proposal; successful applicants receive the full-proposal form from the Research and Partnerships Officer to complete and return for the trustees.

What to send:

  • Research grants
    • A lay summary of the project with a length of around 500 words and a technical summary targeted at specialists of about 800 words.
    • A full research proposal should provide a more in-depth description of the project, including a budget and timeline of milestones. IPP impact must also be considered as progress from funded progress will be shared with myaware members.

Application success factors

What the charity says:

  • Research grant proposals undergo rigorous peer review overseen by the myaware Medical Committee.
  • Successful applicants are expected to provide annual reports sharing their project’s progress.

Where they fund

Where it says it funds

  • Ireland
  • United Kingdom

Similar funders

Funders supporting work similar to myaware.

Five years of accounts

Financial yearIncomeExpenditureGrants paidAccounts document
year to 31 March 2021£992,799£1,052,417—Accounts for year to 31 March 2021
year to 31 March 2022£706,905£1,022,153—Accounts for year to 31 March 2022
year to 31 March 2023£329,444£716,633—Accounts for year to 31 March 2023
year to 31 March 2024£1,178,400£1,068,135£505,511Accounts for year to 31 March 2024
year to 31 March 2025£449,135£1,054,088£225,501Accounts for year to 31 March 2025

Income vs grants paid

IncomeGrants paid

Total value each financial year

YE 2024
£506k grants
YE 2025
£226k paid

Grants paid stayed within income across the 2 years shown.

  • Grants paid, year to 31 March 2024: grants to institutions, as reported on the charity register (Part B).
  • Grants paid, year to 31 March 2025: grants paid out in the year.

— No grants figure for those years.

Figures from the charity’s filed accounts and its register entry. The document icon links to the charity’s entry on the Charity Commission register, where its filed accounts can be found.

Sources

Other sources

  • Annual report (year to 31 March 2025)

This profile draws on the funder’s own website as well as its filed accounts.

Sources last checked on 30 October 2026.

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